The Infertility Family Research Registry (IFRR) is a growing pool of volunteers interested in helping to improve understanding of the health of people and families that have faced a diagnosis of infertility or dealt with infertility treatments. The registry provides a bridge between these individuals and experienced researchers.
Who can volunteer?
To be part of the Infertility Family Research Registry, volunteers can be:
- Women or men.
- Anyone building a family, regardless of where you are in the family building process.
- People who have had, or are having, difficulty conceiving a pregnancy or carrying a pregnancy to live birth.
- People who had no difficulty getting pregnant, to serve as study controls or comparison subjects.
- People who have undergone fertility treatment, including in vitro fertilization (IVF).
- Egg donors and sperm donors.
- Gestational carriers / Surrogates.
Become a Volunteer
We welcome those trying to have a child as well as those who have already completed their families through treatment or adoption. In addition, the registry needs individuals who had no difficulty getting pregnant, to serve as study controls or comparison subjects.
How does the Infertility Family Research Registry (IFRR) work?
The registry collects ongoing information about your health and that of your family. You enter data when you first register and you can update it periodically. The registry also works by providing you the opportunity to volunteer for additional studies that interest you. Many of the studies involve surveys and interviews or requests for permission to review existing medical records. You are fully in control of when and how you participate. You will provide separate consent for any additional survey, interview, medical record review, or other project in which you participate.
What does the Infertility Family Research Registry (IFRR) do for me?
The Infertility Family Research Registry (IFRR) will provide ongoing summaries of IFRR information and the results of studies that involve IFRR volunteers.
Why do we need an Infertility Family Research Registry (IFRR)?
There are many studies of infertility in the scientific literature: some well designed, some not; some hopeful and some less positive. There are still many factors about infertility and its aftermath that are not well understood. It is our goal to address these factors by doing research that will result in solid and reliable data involving large numbers of individuals.